This essay by was published on the University of Minnesota Press blog and was authored by Ali Kenner as a preview to her new book, Breathtaking: Asthma Care in a Time of Climate Change (2018).
When Cheryl Lansing discovered her asthma care app had disappeared from her smartphone, she was unsettled to say the least. Recommended by her health insurance company, Cheryl had used the care app several times a week for about three months before it faded into the sea of apps that had accumulated on her phone. Cheryl had not missed the app, not until I asked her for a follow-up interview to talk about its features. Part of my research for Breathtaking focused on the rise of mobile health apps, and Cheryl was the one and only person I had interviewed who mentioned using a health app. When she realized it was gone, however, a whole new set of questions emerged: Who had access to Cheryl’s data? What was the data being used for? And how could she recover her records? Read More